It’s really hard to find equal fibroid care for black women. That’s something Kimberly Wilson, our Woman Crush Wednesday nominee, learned the hard way. But, after her healthcare struggle, she’s making it easier to find equal care for black women. And, together with efforts from other groups, Wilson is leveling the playing healthcare playing field. Which is why we’re sharing her story today, and naming her our #WCW, woman crush of the week.
Getting a Fibroid Diagnosis
In 2017, Wilson was diagnosed with fibroids. But, even though she had many fibroid symptoms, getting that diagnosis was really hard. She told Essence magazine, “Over a period of six months, I visited four different providers—all of whom were White men. Two completely dismissed my pain and trauma, while the other two stated that a hysterectomy was my only option. It wasn’t until finding a Black physician—over 100 miles away, that I received the culturally competent care that I needed and deserved.”
After her experience, Wilson wanted to make it easier for women of color to access quality healthcare. And part of that, she realized, meant these women needed help finding culturally sensitive healthcare providers.
That’s when she created HUED, a website that connects patients with medical professionals that specifically understand their cultural, physical and mental-health needs. Her goal? To help people of color access healthcare providers they could trust. Physicians who would listen to their needs. And never dismiss their reports of painful symptoms.
Today, that platform is helping black women access equal fibroid care. And care for many other health conditions. So we applaud Wilson’s efforts. Plus, we’re happy to report, she’s not alone in this fight.
Say Goodbye Fibroids
The White Dress Project, one of our favorite organizations, is also joining the fight. They’ve partnered with Acessa Health Inc. on the Goodbye Fibroids initiative. It’s goal? To unite women, doctors and political leaders in raising awareness of and improving care for women living with fibroids.
They’ve made presentations at the Congressional Black Caucus’ Annual Legislative Conference. And they’ve spent time discussing how women of different races don’t receiving the same quality of fibroid care.
As Acessa Health CEO Kim Rodriguez noted, “Unfortunately, there is a well-established racial barrier to women receiving less invasive alternatives to hysterectomy.”
In other words, black women have a much higher risk of developing fibroids. But they are much less likely to receive information about the full range of fibroid treatment options. Especially about minimally invasive procedures like Uterine Fibroid Embolization.
The facts are clear (and upsetting.) Among women who treated their fibroids with hysterectomies, African American women were less likely to receive a minimally invasive surgery compared to white women. They were also 40% more likely to develop complications. And nearly three times as likely to have an extended hospital stay. Plus, three times as likely to die after their procedures.
While these are statistics for hysterectomies, they don’t even begin to explore other fibroid treatment options. Which likely means that women aren’t even being informed about hysterectomy alternatives. In other words, equal fibroid care for black women is still a distant dream.
Working to Create Equal Fibroid Care for Black Women
Tanika Gray Valbrun, founder of The White Dress Project, also spoke to the Black Caucus. She said, “As a community we need to begin to address and change the clear, systematic and structural defect within the US healthcare system. [It] disproportionately pushes women of color toward the most invasive option, which is hysterectomy.”
As interventional radiologists in Houston, we stand with Wilson and Valbrun. We want all women to know their fibroid treatment options. And we want black women to get equal care and attention from fibroid specialists.
To help that cause, we promote #FibroidFix. This is a campaign to make all women aware of all the available treatment options for fibroids. Particularly the ones that preserve their fertility and minimize the risk of surgical complications. Will you join us in spreading the word?
We invite you to reach out to us for more information about UFE. And we ask you to share this information with all your female friends. You’ll help us make better healthcare accessible to every woman in this country.